Introduction & About Us
The Coeliac Society of Ireland is the national charity supporting those diagnosed with coeliac disease or following a gluten-free diet for medical reasons.
As the Society is over 80% self-funded, our Members are integral to our very existence and growth. We are committed to providing you with the highest quality of service. For any Membership organisation to be successful, there needs to be an agreement as to what we do for each other, not only so you can be guaranteed certain services, but also that you are clear what is possible within the terms of Membership. This charter explains what you can expect from us and what we would like from you in return.
Our Promise to You
When you become a Member of the Coeliac Society of Ireland, we promise to use your membership fees and donations as effectively and efficiently as possible. We will do this by the following actions:
Managing Your Personal Information
- On joining the Society, we will ask you questions about your diagnosis of coeliac disease and symptoms you experienced.
- We collect this information to determine trends in the rate of diagnosis and will not share personally identifiable information with any third parties.
- We will record and store this information safely and accurately, in compliance with all relevant legislation.
Keeping You Informed
- Provide you with an annual Food List of all products where we have received formal certification/declaration of their gluten free status. (Please note we rely on manufacturers to tell us if the gluten free status of their product changes; we update you as soon as we receive this information.)
- Send you a monthly e-mail newsletter and a quarterly magazine with the latest information on the work we are undertaking on your behalf and the progress being made.
- Occasionally contact you regarding events and campaigns which may be of interest to you.
Supporting You Everyday
- Support you with useful information both before, during and after your path to diagnosis, via phone, e- mail and social media.
- Respond to your queries in a timely manner. (Please remember that as a small team we do our best to deal with queries relating to manufacturers as efficiently as possible.)
- Present the concerns of our Members at national and local level, through meetings and other
- communications with government and opposition politicians, medical and clinical professionals and at a European level through our membership of the Association of European Coeliac Societies.
- Provide Members with opportunities to engage with each other both online and through member events.
- Listen to your concerns and suggestions and facilitate feedback, ensuring future growth of the Society is of benefit to all. If you need to make a complaint, please click here for details of our Complaints Procedure.
Ensuring Good Governance and Transparency
- The Coeliac Society of Ireland is committed to achieving and maintaining the highest possible standards of good governance and transparency. We are a registered charity, both with the Revenue Commissioners and the Charities Regulatory Authority.
- We are committed to following the recognised Fundraising Guidelines and to compliance with the Voluntary Code of Practice for Good Governance in the Charitable Sector.
- We also audit our annual accounts to the recognised Charity SORP standards and make these publicly available on our website.
- The day-to-day operations of the Society are undertaken by a team of 7 full-time employees,
- overseen by a CEO, who in turn is guided and supported by a voluntary Board of Directors.
How You Can Help Us
The Coeliac Society of Ireland exists for and on behalf of our Members; everything we do is with the aim of making Ireland an easier place to live for those with coeliac disease. Your membership fees make up just over 30% of all our income, so we simply would not be able to do what we do without your support.
To help us help you, we ask that you:
- Provide us with up-to-date contact information so we can provide you with all elements your
- membership entitles you to.
- Bear in mind that the Society is a small team of just 5 full-time people.
- We endeavour to provide our Members with useful information and respond to queries as efficiently and as fully as possible.
- We would ask Members to be patient, as we are only as fast as the response we receive from manufacturers and suppliers, which can often take a while.
- Let us be the first to know if you are unhappy with our service or where you feel we could offer additional support.
We are always happy to hear your feedback and suggestions. The best way to contact us is via email to firstname.lastname@example.org